Canada in Need of Rare Disease Strategy

Canadian Organization for Rare Disorders reported that most of the 2.8 million Canadians with a rare disease experience extraordinary and unnecessary barriers getting the right diagnosis, specialist, and treatment. As such, Canadian Organization for Rare Disorders (CORD) and the Economic Club of Canada convened a panel calling for the immediate implementation of Canada’s Rare Disease Strategy.
According Durhane Wong-Rieger, President and CEO of CORD:

We have crafted a Strategy that is both ambitious and achievable. Canadian strategies for cancer, heart disease, and diabetes have significantly improved quality and longevity of life. More than 30 other countries have national rare disease plans. With respect to drugs for rare diseases, patients have been waiting for over a decade for the national plan that was promised by Health Ministers in 2005. But we are hopeful that these Health Ministers will announce concrete steps towards fulfilling that commitment.

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